Well today was the very first surgery of my life.
I have to admit that I was very nervous.
I think I was nervous about having a “real” surgery to begin with but also nervous about the results of the surgery as well. The results of the surgery were putting a port for my chemo treatment and a feeding tube (PEG tube) in my stomach. The thought of various tubes permanently hanging out of my body was kind of freaking me out. My wife was there by my side until they wheeled me away though and helped me to stay strong.
Upon waking up I was no longer freaked out but felt pretty good about what had taken place (I think the pain medication may have helped).
I think the main reason for this switch is that the anticipation of the unknown was now gone and so I could focus on the benefits of the work which was done. I think I am more excited about the feeding tube then the chemo port. The reason for this is that I have had trouble eating for a while and it had been getting worse. With the tube I will be able to get the food into my system that I need without struggling.
With the chemo port I am told that I will not need anymore IV’s so that is a bonus. IV’s and shots are my least favorite part of this experience so far but as bad as they are they don’t comapare to the…
BLOOD PRESURE CUFF Read More
As if being diagnosed with cancer wasn’t a big enough shock there is another part to my story that delivered almost as big of a blow to my wife and I. See, I was laid off from my job back in January. As apart of being laid off I was offered Cobra which would have allowed me to continue my company-sponsored health insurance. I would have to pay the whole amount of the policy which was about $950/month. Being recently unemployed and unable to find a job I elected not to participate and we had kids covered under a local Medicaid program (funny, the kids qualified but Elsy and I did not).
to participate. Our monthly total for insurance would be around $350. It would still be tough to come up with that extra money every month but it would be worth it we thought. When we got the first bill to start the Cobra coverage it was $1250. See they wanted us to pay for the ~3 months of coverage that we never used. While $350/month would be tight, but possible, $1250 was unattainable after being unemployed for almost 4 months. We did not take the coverage.











My Official Treatment Plan and Start Date
So I just got the final word on the what and when in regard to my treat plan. The 6 week chemo and radiation treatment plan is still in place but with a twist. See I am to have chemo on the first and last week of the 6 week plan. But during those weeks I am supposed to be getting chemo for a 16 hour period each day. On top of that I am supposed to make it to get zapped by radiation each day as well. We asked our nurse about the logistical part of this yesterday and she said she would work it out with the doctor and call us.
Well the doctor himself called today and said if I still want the 6 week treatment plan that I would need to be admitted to the hospital for the 1st and 6th week of treatment. The reason for this is that the standard chemo treatment office is only open regular business hours Monday through Friday. If I am admitted they can administer continuously like it needs to be done. He offered me that or a 3 month treatment plan where I have to carry a pump around with me.
We chose the 6 week plan.
The first reason for this is that I get the treatment done in half the time. The other benefit is if I do have an complications and/or pain I am there and they can help me with whatever I need. Sure it will be a week in the hospital but I think it is the best place for me to get this done. Also, they will ferry me each day to the radiation a couple blocks away so I will be getting the royal treatment.
Currently the doctor is looking at when I can be admitted but he is shooting Monday the 26th. We should hear back from him soon to confirm it.